One of our key values at UK DRI is to be welcoming – this means our doors are open so we can build connections with researchers and partners globally, learn from people affected by dementia, engage with the public more widely and connect with politicians to keep dementia top of the agenda.
Learning from people with lived experience of dementia
We exist to improve the lives of those at risk of or living with dementia and their carers. We believe our research is strengthened by input from people with lived experience of neurodegenerative diseases.
We formed our Lived Experience Group in 2019, made up of people living with different forms of dementia and people who have cared for or are caring for loved ones. Members of the group act as advocates and ambassadors for the Institute, helping explain what we do and sharing our outcomes with wider networks, to help build a supportive society. Members also provide feedback to UK DRI scientists on their research into dementia.
To date we have seen many benefits of involvement. This includes valuable input at launch events, for our communications materials and on key selection panels – including appointing our founding Institute Director Bart De Strooper and joining the selection panel for our Care Research & Technology Centre. Involving people living with dementia is essential for the human-centred research taking place at this Centre.
See an example below demonstrating how engagement with people affected by dementia had a significant impact on UK DRI research aim to develop brain stimulation technology for Alzheimer's disease.