We would like to thank and acknowledge several individuals and organisations who have contributed expertise and resources into the development of this website (launched November 2024).
This includes a number of researchers, clinicians, industry experts, charity partners, Board of Trustee members, Centre staff and people with lived experience of dementia and associated neurodegenerative conditions.
Public resources
As part of the project to redevelop the UK DRI website, the communications team collaborated with a working group formed of people with lived experience of dementia and associated neurodegenerative conditions such as Alzheimer’s, Parkinson’s and motor neuron disease.
We would like to thank them below for sharing their hugely valuable ideas and experience, alongside lived experience facilitators, healthcare professionals and the communications agency Sorted Comms.
People with lived experience
- Anna Ferguson-Montague
- Martin Robertson
- Maria Connolly
- Roddy Stewart
- Bruce Virgo
- Sue Boex
Facilitators
- Sophie Horrocks (Designer & Public Involvement Lead, Helix Centre / UK DRI Care Research & Technology)
- Laura Jacobs (Research Involvement Manager, Parkinson’s UK)
- Judith Newton (MND Nurse Consultant & Deputy Director of the Anne Rowling Clinic)
Healthcare professionals
- Emma Edwards (Parkinson’s specialist nurse, Livewell Southwest)
- Suvankar Pal (Professor of Neurodegenerative Disorders and Clinical Trials and Honorary Consultant Neurologist, MND-SMART)
- Rachel Taylor (Consultant Nurse & Clinical Lead, Huntington's Clinic, The National Hospital for Neurology and Neurosurgery, Queen's Square)
- Phil Weston (Wellcome Trust Clinician Scientist & Consultant Neurologist at the National Hospital for Neurology & Neurosurgery)
Over the coming months and years, we will work to improve the public resources we offer on our website and across our communications. If you have any comments or feedback, please contact Senior Digital Communications Officer, Michelle McGrath (michelle.mcgrath@ukdri.ac.uk).
Imagery
While we endeavour to use imagery of people affected by neurodegenerative conditions where possible, we do currently have to populate parts of the website with stock imagery.
We are grateful to:
- the Centre for Better Ageing, for making resources from their Age-positive image library available to all for free, helping to depict older people in non-stereotypical ways and providing a positive and more realistic depiction of later life.
- Understanding Animal Research, providing a free, high-quality image bank of a wide range of laboratory animals. Most laboratory animal pictures are from UK laboratories in universities and other research facilities.