Involving people with lived experience of dementia is essential to ensuring that our research meets the most pressing needs of people affected, and that interventions for dementia are as accessible, usable, and effective as possible. In this article, we showcase some of the amazing work people who have lived experience have done at the UK DRI, and the impact it has made.
The Lived Experience Group: changing how dementia research is done
Soon after becoming established, the UK DRI formed a Lived Experience Group. Its members include people living with various forms of dementia, as well as others who care for people affected by the condition. The Lived Experience Group engages in many areas of UK DRI research and outreach - including sharing the UK DRI’s work with wider networks, providing input on events and communications materials, and giving researchers feedback on the solutions they’re developing.
Earlier this year, members of the group got involved in a project to develop an exciting new piece of technology. Created by researcher Dr Nir Grossman, the tech, in the form of a headset, aims to provide non-invasive deep brain stimulation that could be used to treat people with dementia and other cognitive conditions. While the headset was still in early stages of development, people with lived experience took part in a series of workshops to ensure that the end product would be as suitable and impactful as possible for its intended users.